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Shared November 6, 2026
For 12 years, Maura has bravely faced the drastic physical changes that scleroderma brought to her life, her skin, and her hands. At first, fear and shame tried to isolate her from the world, but in the midst of the storm, she found unwavering strength and inner peace. Her story is not only a call to resilience but also a warning about the urgent need to raise awareness of rare and autoimmune diseases that silently affect thousands of people.
We urgently call on NGOs, patient support foundations, and healthcare organizations to join forces. People with scleroderma and rare diseases need greater access to dignified treatments, psychological support, and support networks so that no patient has to walk this path alone. Let's support, spread the word, and build hope!
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