Cure Sanfilippo Foundation - Invidious

Cure Sanfilippo Foundation

Every parent dreams about their kid’s future and watching it unfold. Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and typically dies in their mid-teens. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children.

Learn more and donate:
CureSanfilippoFoundation.org/

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4:37

Glenn and Cara O'Neill's raw video upon Fayuvi being approved by the FDA for Sanfilippo Type A

Cure Sanfilippo Foundation

Shared 6 hours ago

6 views

1:06:18

Effect of novel photobiomodulation parameters in a mouse model of Sanfilippo syndrome

Cure Sanfilippo Foundation

Shared 4 months ago

166 views

18:04

Exploring the Therapeutic Potential of Cannabidiol in Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 6 months ago

43 views

8:56

Cannabinoids 101 - Over-the-Counter compared to Medical-Grade Cannabidiol

Cure Sanfilippo Foundation

Shared 6 months ago

72 views

51:09

Oral Motor Function Therapy for Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 8 months ago

133 views

52:37

Estate Planning & Sanfilippo Syndrome: What Providers Need To Know

Cure Sanfilippo Foundation

Shared 10 months ago

30 views

41:55

Implementing AAC with Speech and ABA Therapy

Cure Sanfilippo Foundation

Shared 10 months ago

390 views

5:53

Help cure Poppy & Oliver

Cure Sanfilippo Foundation

Shared 11 months ago

1.6K views

50:51

Hippotherapy & Sanfilippo: How Providers Can Get Involved

Cure Sanfilippo Foundation

Shared 1 year ago

75 views

42:16

Hippotherapy & Sanfilippo: What Families Need to Know

Cure Sanfilippo Foundation

Shared 1 year ago

39 views

5:11

Our experience with hippotherapy and Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

151 views

6:12

Getting ready for a school day with Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

1.2K views

3:15

Family ski trip is a wild success, thanks to amazing adaptive ski program

Cure Sanfilippo Foundation

Shared 1 year ago

82 views

4:16

Tips for having a successful Make-A-Wish trip with Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

139 views

5:29

This is how we do it: Long-Distance Traveling with Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

138 views

3:11

This is how we do it: Running errands with Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

899 views

5:56

This is how we do it: Creating Alex’s nighttime routine

Cure Sanfilippo Foundation

Shared 1 year ago

270 views

42:12

Tips & Tricks on Insurance and ABA Therapy

Cure Sanfilippo Foundation

Shared 1 year ago

205 views

12:04

ADVANCE 2024: Introduction keynote

Cure Sanfilippo Foundation

Shared 1 year ago

189 views

1:48:05

ADVANCE 2024: Deep Dive Gene Therapy Considerations

Cure Sanfilippo Foundation

Shared 1 year ago

222 views

1:10:51

ADVANCE 2024: Impact of Sanfilippo on the Retina

Cure Sanfilippo Foundation

Shared 1 year ago

88 views

1:18:49

ADVANCE 2024: Deep Dive: Supporting Health Through Nutrition

Cure Sanfilippo Foundation

Shared 1 year ago

97 views

30:10

ADVANCE 2024: The Advantage of Qualitative Interviews in Clinical Trials

Cure Sanfilippo Foundation

Shared 1 year ago

35 views

43:53

ADVANCE 2024: Updates on Clinical Trials for Sanfilippo Syndrome (Part 1)

Cure Sanfilippo Foundation

Shared 1 year ago

186 views

28:49

ADVANCE 2024: Cure Sanfilippo Foundation Programs Affecting Change

Cure Sanfilippo Foundation

Shared 1 year ago

67 views

59:48

ADVANCE 2024: Advances in Preclinical Research For Sanfilippo

Cure Sanfilippo Foundation

Shared 1 year ago

114 views

29:38

ADVANCE 2024: Sanfilippo In My Voice: Experience with Brain & Tissue Donation

Cure Sanfilippo Foundation

Shared 1 year ago

80 views

1:06:23

ADVANCE 2024: Deep Dive: Mitochondria & Metabolism in Sanfilippo

Cure Sanfilippo Foundation

Shared 1 year ago

197 views

1:04:31

ADVANCE 2024: Drug Repurposing Studies for Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 1 year ago

104 views

24:20

ADVANCE 2024: Evidence-Based Architectural Design Strategies for Enriching Environments

Cure Sanfilippo Foundation

Shared 1 year ago

106 views

30:58

ADVANCE 2024: How does the “Accelerated Approval” process work?

Cure Sanfilippo Foundation

Shared 1 year ago

86 views

52:09

ADVANCE 2024: Updates on Clinical Trials for Sanfilippo Syndrome (Part 2)

Cure Sanfilippo Foundation

Shared 1 year ago

181 views

1:59

ADVANCE 2024: Closing from Cure Sanfilippo founders

Cure Sanfilippo Foundation

Shared 1 year ago

58 views

24:11

ADVANCE 2024: Sanfilippo in My Voice: Our Experience Living with Attenuated Sanfilippo Type B

Cure Sanfilippo Foundation

Shared 1 year ago

590 views

6:19

ADVANCE 2024: In Memoriam Tribute

Cure Sanfilippo Foundation

Shared 1 year ago

129 views

9:23

ADVANCE 2024: "How We Do It" families #1 & #2

Cure Sanfilippo Foundation

Shared 1 year ago

201 views

10:10

ADVANCE 2024: "How We Do It" families #3 & #4

Cure Sanfilippo Foundation

Shared 1 year ago

129 views

4:51

ADVANCE 2024: "How We Do It" family #5

Cure Sanfilippo Foundation

Shared 1 year ago

212 views

6:17

ADVANCE 2024: "How We Do It" family #6

Cure Sanfilippo Foundation

Shared 1 year ago

145 views

11:59

ADVANCE 2024: "How We Do It' family #7

Cure Sanfilippo Foundation

Shared 1 year ago

103 views

5:34

ADVANCE 2024: "How We Do It" family #8

Cure Sanfilippo Foundation

Shared 1 year ago

129 views

10:33

ADVANCE 2024: Closing Remarks at the Reagan-Udall Meeting with the FDA

Cure Sanfilippo Foundation

Shared 1 year ago

66 views

3:15

We need a miracle. Save Lydia.

Cure Sanfilippo Foundation

Shared 1 year ago

3.5K views

10:51

Cara O'Neill | Qualifying Biomarkers to Support Rare Disease Regulatory Pathways | Closing Speech

Cure Sanfilippo Foundation

Shared 2 years ago

134 views

31:32

Life with "Attenuated" Sanfilippo Syndrome | The Kohlmorgan Family

Cure Sanfilippo Foundation

Shared 2 years ago

1.9K views

53:33

Durable Medical Equipment (DME) and Sanfilippo Syndrome

Cure Sanfilippo Foundation

Shared 2 years ago

212 views

54:51

What is Assistive Technology and how can it help your child communicate?

Cure Sanfilippo Foundation

Shared 2 years ago

221 views

3:17

First time parents watch video they hope will save their daughter

Cure Sanfilippo Foundation

Shared 2 years ago

200 views

1:19:38

Update on Ultragenyx's Sanfilippo syndrome Type A Gene Therapy program (UX111) - March 26, 2024

Cure Sanfilippo Foundation

Shared 2 years ago

1.1K views

2:58

Saving Veda from Sanfilippo syndrome

Cure Sanfilippo Foundation

Shared 2 years ago

4.9K views

3:10

A Message to You on the 10-Year Anniversary of Cure Sanfilippo Foundation

Cure Sanfilippo Foundation

Shared 2 years ago

3.4K views

11:07

Development of Global Consensus Clinical Care Guidelines for Sanfilippo Syndrome, WORLDSymposium2023

Cure Sanfilippo Foundation

Shared 3 years ago

210 views

3:31

Parents' first watch of a video they hope will save their daughter Liv

Cure Sanfilippo Foundation

Shared 3 years ago

2.3K views

3:15

This video can save our 3-year-old daughter's life: #SavingLiv

Cure Sanfilippo Foundation

Shared 3 years ago

10K views

0:15

Saving Liv - Coming Saturday, Dec. 3

Cure Sanfilippo Foundation

Shared 3 years ago

292 views

8:20

New Sanfilippo drug repurposing clinical trial; updates on other research + more

Cure Sanfilippo Foundation

Shared 3 years ago

882 views

3:29:34

ADVANCE 22 Sanfilippo Conference - Day 1, Part 1

Cure Sanfilippo Foundation

Shared 3 years ago

397 views

2:14:32

ADVANCE 22 Sanfilippo conference - Day 2, Part 3

Cure Sanfilippo Foundation

Shared 3 years ago

181 views

2:05:55

ADVANCE 22 Sanfilippo conference - Day 2, Part 2

Cure Sanfilippo Foundation

Shared 3 years ago

105 views

2:31:14

ADVANCE 22 Sanfilippo conference - Day 2, Part 1

Cure Sanfilippo Foundation

Shared 3 years ago

172 views